Portland, OR -- On July 26, 2015, 75 people, collectively known as Team 4 Jaden Marv, will participate in the Portland NF Walk to raise awareness and money to fund research into neurofibromatosis (NF). Team 4 Jaden Marv will walk on behalf of "NF Hero" Jaden Marv, a 3-year-old who lives with NF1, and inspires this team in their mission.
Team 4 Jaden Marv includes Jaden Marv's friends and family who are taking part in the Portland NF Walk to raise funds for the Children's Tumor Foundation, a nonprofit whose mission is to end neurofibromatosis through research. NF is a genetic disorder that can cause tumors to grow on nerves throughout the body and affects one in every 3,000 people. Currently there is no cure or effective treatment for NF.
“Jaden Marv is a happy, sweet, loving boy. He loves his family, playing on his iPad, playing with his cars and Pre-school. He was diagnosed with NF1 at just 6 months old. Our family has watched him fight every day of his life,” said Mandy Fernando, Jaden Marv’s mom and Portland NF Walk Organizer. “Sometimes the fight is not visible to the outside world, but we know how hard Jaden Marv works every day to overcome his NF. Through it all, he is a brave, strong, happy boy. He has taught us so much in his short 3 years of life, and has been a blessing to our family!”
NF Walk is a national fundraising program of the Children's Tumor Foundation that supports NF research, raises awareness, and provides support for individuals with NF and their families. An NF Walk brings together families, friends, and neighbors for fun-filled events, such as face painting, hula hoop contest, raffle, and BBQ.
For additional information and registration, visit www.nfwalk.org/portland.
About Children’s Tumor Foundation
The Children's Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF can cause tumors to grow on nerves throughout the body and may lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain. NF affects one in every 3,000 people, more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined. The Children’s Tumor Foundation funds critical research into neurofibromatosis. In addition to benefiting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community. For more information, please visit www.ctf.org.
